Stress and Resilience of parents and caregivers of children with disabilities

Abstract

Objective: To evaluate the resilience of parents and caregivers of children with disabilities and the associated factors according to the scientific literature and to understand the importance of quality of life, emotional aspects, stress and care of parents and caregivers of children and adolescents with disabilities. Method: This is a bibliographic review carried out in the Electronic Library Scientific Electronic Library and in the databases Latin American and Caribbean Literature on Social and Health Sciences. For the search, the following keywords were used: children with disabilities; school and social inclusion; public policies; mental disability; family; public policies; mental disability; family; caregiver stress. Results: The biggest challenge and ensuring that children with disabilities have an active voice in the population, looking for a society so that they can get involved in social life, a number of barriers limits their ability to access social services (such as education and health) and engage in their communities. These include: physical barriers such as buildings and bathrooms that do not have wheelchair access, bullying, textbooks unavailable in Braille or public health announcements delivered without interpretation in sign language and all these aspects impact the lives of parents and caregivers. Conclusion: children with disabilities face multiple and often complex challenges in realizing their rights, starting with access to reading education at home, children with disabilities are less likely to be included or heard in almost all measures. Too often, children with disabilities are simply abandoned.